Links to Trusted Resources

National Organizations Providing Caregiver Resources

1. AARP
AARP’s Caregiving Resource Center provides family caregivers with information, tools and resources to help them on their caregiving journey.

2. Alzheimer’s Association
Specializing in caring for those with Alzheimer’s and other dementias, the Alzheimer’s Association has links with details on what to expect for each disease stage and links to local respite care and activities, legal and financial advice and resources, and local caregiver support groups.

3. Alzheimer’s Foundation
The Alzheimer’s Foundation provides online tips, a toll-free hotline, educational and social services, professional development, advocacy and grants, as well as a link for teens to connect, educate others and support caregiving teens.

4. American Association of Caregiving Youth
The American Association of Caregiving Youth is geared toward supporting the 1.4 million children and teens who are caregiving for parents and grandparents. They provide counseling and support services, education and advocacy. The Association works directly with schools to help students remain academically successful while they are in the caregiving role.

5. ARCH National Respite Network
The ARCH (Access to Respite Care and Help) National Respite Network connects caregivers directly to local respite and crisis care services, assists and promotes the development of quality respite and crisis care programs, and advocates for respite in all forums.

6. BenefitsCheckUp
BenefitsCheckUp is a free service of the National Council on Aging (NCOA), a nonprofit service and advocacy organization in Washington, DC. The organization identifies over 2,000 federal, state and private benefits programs available to help adults over 55who need help paying for prescription drugs, health care, utilities, and other basic needs.

7. Caring Bridge
CaringBridge.org connects families and friends who are experiencing a significant health challenge through private websites where people can share updates and support.

8.Dementia Society of America
Established to enhance the quality of life for those living with Dementia, their caregivers and the community. Get access to educational material, directories, and an information hotline.

9. Eldercare Locator
A free nationwide directory assistance service, eldercare locator helps older persons and their family caregivers locate local support resources. It is administered through the National Association of Area Agencies on Aging in Washington, D.C.

10. Family Caregiver Alliance
The Family Caregiver Alliance supports caregivers through information, education, services and research. It also advocates for family caregivers.

11. Medicare.gov Forms, Help & Resources
The Medicare.gov landing page has links to resources, tools and answers to questions about Medicare. Get access to forms and the Medicare & You Handbook.

12. National Alliance for Caregiving
A coalition of 40 national organizations that conducts research and policy analysis, develops national programs and works to increase public awareness of family caregiving issues across the life span.

13. National Adult Day Services Association
The National Adult Day Services association connects family caregivers with adult day centers and supports the interests of adult day services’ providers. It provides members with advocacy, educational and networking opportunities, technical assistance and research, and communications services.

14. National Association of Professional Geriatric Care Managers
The National Association of Professional Geriatric Care Managers is a nonprofit professional development organization whose mission is to advance professional geriatric care management and make it easier for caregivers to finding the best geriatric care manager via online zip code search.

15. National Family Caregiver Support Program
Overseen by the Administration on Aging, the NFCSP provides five types of services: information to caregivers about available services, assistance to caregivers in gaining access to the services, individual counseling, organization of support groups, and caregiver training, respite care, and supplemental services, on a limited basis.

16. National Institute on Aging’s National Alzheimer’s Education and Referral Center
The National Institute on Aging’s National Alzheimer’s Education and Referral Center has a section for Caregivers with tip sheets and resources on behaviors, care, communication, relationships, safety, caregiver health, legal and financial issue and stages. I

17. National Long-Term Care Clearinghouse
For caregivers or elders considering long-term care, this clearinghouse run by the Administration on Aging answers questions about the nature of long-term care, who needs it, how much it costs (with a state-by state breakdown), how it can be paid for, who provides care within long-term care facilities, details on Medicare and Medicaid coverage of long-term care, even legal help for LGBT elders considering long-term care.

18. VA Caregiver Support
Run by the U.S. Department of Veterans Affairs, it provides support and services for family caregivers of veterans.

19. Well Spouse Association
The Well Spouse Association provides peer support and education about the special challenges and unique issues facing “well” spouses.